Well we survived the other set of tubes he had put in his ears last week. Even though he pitched a TOTAL FIT coming out of the anesthesia. He was really freaking out. He did not want to put on his clothes, he did not want to leave the hospital and when we finally dragged him out to the car and forced him into the carseat he took off his shirt under the carseat belt and was trying to open the car door going down the road. For anyone who knows him you know this is not my little boy. That stuff messed him up. When we got home he went running in the yard toward the road. Finally about an hour after being home he snapped out of it and asked me for a juice. Thank God! So now he is back to normal. Thanks for your prayers.
Another surgery behind us
Well we survived the other set of tubes he had put in his ears last week. Even though he pitched a TOTAL FIT coming out of the anesthesia. He was really freaking out. He did not want to put on his clothes, he did not want to leave the hospital and when we finally dragged him out to the car and forced him into the carseat he took off his shirt under the carseat belt and was trying to open the car door going down the road. For anyone who knows him you know this is not my little boy. That stuff messed him up. When we got home he went running in the yard toward the road. Finally about an hour after being home he snapped out of it and asked me for a juice. Thank God! So now he is back to normal. Thanks for your prayers.
Almost Centered!
We have almost centered Jaron's Premaxilla! So the next step is going to be pushing it back into his mouth. I was changing his tapes and finally caught a smile with my camera. He is getting so big and starting to smile more each day. I am still so amazed at how much he resembles Jacob as a baby. We went to Atlanta Friday for another adjustment and things are good right now. We have gotten rid of the sores but who knows what tomorrow has for us.
Praise the Lord!
We got the results from Jaron's chromosomes tests and they said everything is normal. Which means it is only the isolated cleft lip and palate. For those who don't know, there are several other things that come along with clefts and we were fortunate enough to not have to worry about any of them. God is truly good!!! We want to give him all the glory.
Big "J" and Little "j"
This is our new nick names for the boys. Jacob thinks it's great! Here they are laying on our bed together. Jacob can't get enough of Jaron. He loves to hold him and kiss him and he tells me all the time "I love his NAM mommy". What a great big brother! He has to get a second set of tubes in his ears tomorrow at 10:15am. He is keeping fluid on his ears and the others he had in there have been out for some months. So they say he will be able to hear better with more tubes, not that I think he can't hear now but with fluid they say it sounds like you are under water all the time. So anyway, say a little prayer for him tomorrow. He will be put to sleep, the procedure is 30 minutes so not bad just scary to be put to sleep. We'll keep you posted. Thanks for reading.
Without his NAM
Here is a picture of Jaron kinda smiling without his NAM in. We were letting a sore heal so we had it out for a little bit. He is getting so big. We go back to Atl. Friday 12th. for another adjustment. Things were a little rough this weekend. We went to TN for a wedding and I took out the NAM sat. night to clean it and he was bleeding. So we called Dr. Granger in Atl. and he met us at CHOA for an emergency adjustment on Sunday. Jaron seems to be doing a little better now. I don't know sometimes. It's hard to get him to drink a full 3 oz. This NAM is a lot of work and very stressful at times, but I know it's the best thing for him. Please keep us in your prayers.
Second Trip to NY
Well we made it back to NY again yesterday and they said everything is looking good. Jaron has a sore on his mouth from the NAM so they smoothed out that part of it and we hope things will get better this week. We are trying to recover today from lack of sleep. I hope he does good tonight. The day he sleeps 6 or 7 hours straight will be SUCH a blessing. We will be seeing Dr. Granger in Atlanta again Friday 12th and then we go back to NY August. 16th for another check up. After that I think we plan to go every 3 or 4 weeks. Thank you for all your prayers and we will keep you updated after each Dr. visit if not before. Enjoy the pictures!
Smile!
Here is our handsome little man. He is growing up so fast. Always wants to help with Jaron. He gets me diapers and bottles and shares all his toys with Jaron. I am so proud of my Jacob. He loves his brother so much. He likes to tickle his toes.
Oh so Cuddly!
Here is my handsome little boy all cuddled up asleep on the boppy pillow. Life is so tiring. :-) We are starting to get better sleep at night. I have been bathing him very late and keeping him awake more during the day. So he mostly just wakes up for a bottle and back to sleep. You watch now that I said that he won't sleep a wink tonight and we are going to NY tomorrow. He has a sore on his mouth where Dr. Granger in Atl. adjusted it and so that makes feedings hard. I hope Dr. Grayson in NY can fix it and maybe next week will be easier for us. Thanks for reading.
Playing with my Brother
I love to sit with Jaron and play with his hands and rub his head. Mommy was getting ready so we are in the bathroom here in the picture.
Back to Atlanta Today
Well we went to the doctor in Atlanta today for Jaron's 1st NAM adjustment. He has been fussy with it and got a couple sores in his mouth, which is normal. We have smoothed it out and they say each week gets a little easier. I hope so. I want him to be happy and get used to it so he will drink better. I have medicine for his sore in his mouth and I think this week should be easier than last. He is getting more alert and he SMILED AT ME for the first time in the doctor's office today. I was making a SSSS noise looking at him and he was looking at me and smiled real big without his NAM so it was and it was so PRECIOUS!!! I laughed out loud. Maybe one day soon I can get a picture of him smiling and I will post it. Oh and I asked if we could weigh him and he weighed 9 lbs. 12 oz. Anyway, thanks for reading. God Bless You All.
Playing the Guitar
Here I am playing my guitar. Do you love my little tank top! :-) I am getting so big and my brother is so little. He likes to lay with me on my pillow.
Week one with the NAM
Well we are hanging in there this week. Jaron is still drinking his bottles but sometimes I have been numbing his mouth. He has developed some sores from his NAM and we were given a dremel which can be VERY helpful in smoothing down the rough spots. We go back to ATL. Friday at 2pm and I hope they make it better. Jaron has been swatting at his NAM and it pops him in the mouth and he screams. Of course they told me that he wouldn't do that because he is so little but my child has to be the exception to the rule. Anyway, we are still having issues at night. I think he has colic. Very fussy at night with stomach pains. So please keep praying for us that things will get better and mommy can get some sleep. We go back to NYU Wed. Aug. 3rd.
Handsome Little Man
Well here I am all grown up! We were walking out the door for church. I am a big boy now, using the potty, sitting on the front row at church with daddy and helping mommy with Jaron. I will be 3 years old Sept. 12th. Wow time flies!
Lovin' My Brother
Well this is me loving on my brother again! He is so precious and I love to rub his head and kiss him on the cheek. I am so proud of Jaron and I can't wait until he can play with me.
Jaron Got His NAM!
Well today is the big day! We went to CHOA today at 2pm and saw Dr. Granger. He put the NAM on Jaron and sent us on our way. This is going to be a lot of work for us but from what they tell me it will help him to drink a bottle better and take in less air. I hope so. Tonight will be the first night so please say a prayer for me that he sleeps good. He definately looks different and it is a change for us since we have gotten used to his cute little face these last 3 weeks. But we know it is what he needs to prepare things for surgery. They say it does not hurt him and he did better than most leaving the office asleep. He did drink a few oz. with it in so far and seems to do alright. We walked in the dor and Jacob just said "Jaron's got his bandaid" He knew what to expect from all the pictures he has seen. He's a great big brother. Remember to check the blog and I will keep you posted.
First Trip To New York!
Well we made our flight on time Wed. morning and Jaron slept the whole flight it was wonderful. And my friend came and got us from the airport and took us to the hospital. Everyone was so nice at NYU. We finally got back to see Dr. Grayson and he looked at the "Simon Arts Bands" and said Dr. Cutting was on his way. So when Cutting got there he looked and said yes we have to snip them. He said I should go out and it would take 2 minutes. So they numbed him with lidocaine and when they were all done they brought him to me and he was asleep. His mouth had lots of blood around it and on his tongue. They wanted me to wait about 45 minutes before I fed him to make sure the bleeding was stopped. He would not take his bottle so to make a LOONNGGG story very short....he SCREAMED the 1st hour of the flight back home and slept the second hour. He screamed when we got home wanting a bottle but wouldn't take one. So now I am feeding him with a medicine dropper. Poor little guy's mouth hurts and I sure do hope it gets better soon. Dr. Cutting said he had to put one stitch and it will disolve and they said wait and let Granger put the NAM on this Friday when we go. So that is the plan unless he thinks we need to mold him for a new one now. His premaxilla is very moveable now so that is good. We go to Atlanta Friday @ 2pm. Check back later that night or Saturday for possibly a picture of him wearing his NAM or just an updated post. Yesterday was very rough and I am going back Aug. 3rd too. Keep us in your prayers.
Jaron looks like me!
Well mom had to dress Jaron in the same onesie she dressed me in for the hospital pictures. And believe it or not, Jaron looks a lot like I did when I was born. If it wasn't for the cleft you may not be able to tell us apart.
Projectile Spit up!
Well Jaron has been spitting up more and more with each feeding so I thought he might have acid reflux. Believe it or not it is very common in babies and I looked online and it seems he has all the symptoms. So I made an appointment with the pediatrician, they are open on Sunday's, Thank God. And we dropped Jacob and Daddy off at church and I took him to the doc during the sunday school hour. He does have acid reflux and they gave him Zantac to help with that. I have noticed a difference. No more projectile MESS! He still spits up some but not much. He also suggested I add rice cereal to his bottles to help settle his milk in his stomach. I think it is helping. So they say that he could be on Zantac for months or up to a year old. They eventually grow out of it. 2 MORE DAYS~NY here we come! :-)
Our 2nd Trip to Atlanta
Well we went back to Atlanta today to get his NAM and Dr. Granger said he had already talked with Dr. Grayson in NY about Jaron. We discovered he has what they call bands. It is little peices of skin holding that middle peice over to one side. The center peice is called the premaxilla and they need to center that with the NAM but cannot until they cut those bands of skin. So we will see Dr. Cutting in NY wed. and they will numb it locally to snip the skin (they are very little). Then when they cut it loose they think the premaxilla (center peice sticking out) will move over on it's own. So then they will put his NAM on up there (Dr. Granger gave it to me to take to NY) or if the premaxilla moves too much they will have to mold him for a new NAM. So he is not currently wearing it because it won't help anything until they cut that skin. We'll keep you posted.
Potty Training!!!
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Thank God Jacob has finally decided that he should stop pooping in his underwear. He has been using it in the potty for a couple weeks now. I am so proud of him. At first we would catch him pushing and pick him up and run and sit him on the potty but these last few days he has told me he needs to go. He is getting so big. Now that he's a big brother he has really seemed to mature and behave a little better. He sure does love his baby brother too! The picture above is the first time Jacob saw Jaron. A day to remember!
2 week check-up
I took Jaron for his 2 week check up today and he is 8 lb. 13 oz. and 21" long. He is growing good and in the 50% for his height and weight. I am so glad. Feedings can be difficult at times and he spits up a lot so I was worried if he was actually taking in enough. So now mommy feels better. He will go back for a 2 month check up and have to get 4 shots. We go back to Atlanta tomorrow to get his NAM and we have our first appointment in NY Wed. 20th @ 1pm. That is going to be a long day. Keep us in your prayers and we will keep you posted. Thank you all.
Jaron and Daddy
This is so precious. Jaron sleeping with his daddy. How peaceful. If only he would sleep like this for mommy at night. :-)
Me and my brother!
Jacob loves Jaron so much. He kisses him and rubs his head all the time. He always makes sure to know where Jaron is at all times. He is learning to share mommy.
Works of art!
Jacob loves to color and draw things. These are actually things he drew before Jaron was born. I emailed them to some of you and others haven't seen them at all. He is so smart for his age. Learning every day how to write new letters. We are so proud of him.
Jacob's Blog
Well I had to create Jacob a blog because our family website is maxed out so this is where you can find pictures of Jacob and new things about him. I think it's only fair to have one for him too since I have one for Jaron. So add this to you favorites and check back often for updated pictures and new things about Jacob.
First Trip to Atlanta
Well we took Jaron's to his first appointment at the Children's Hospital of Atlanta today. We met with the Genetisist, Nutritionist & Orthodontist. He got his impression for the NAM and they drew blood for chromosomes testing. We will find out the results by phone in 2-3 weeks on the chromosomes tests. That is just to make sure there is no other underlying defects. Most likely there isn't we just want to be sure. We go back next Friday to get his NAM put in. We have our first appointment in New York for Wed. July 20th @ 1pm. We plan to go up there once a month so they can monitor his progress since they will be doing the surgery in New York. We'll let you know how it goes.
Our trip to the ER
Jaron was having trouble drinking last night because his mouth was bleeding from the bottles rubbing it raw. I was getting worried because he had been too long without anything to drink so we took him to the ER and they put a tube in his mouth to feed him 2 oz. immediately since he had already been crying for 2 hours at that point. They ended up giving me some medicine to numb the sore area and told me to be sure and keep vaseline on his cleft and on the nipples of the bottles. He drank 11/2-2 oz. every 3 hours today at the hospital so they sent us home and I hope they have a better solution when we go to Children's Hospital of Atlanta Friday. He should be getting molded for his NAM on Friday. And it takes them a week to make it so he should have it by Friday 15th. Anyway, we are home now and he is sleeping great and I also got a full nights rest at the hospital so I feel much better too. Thank you for all your prayers.
Jaron is eating good!!!
Well we have mastered the haberman bottle. He drinks about 1 oz. of formula every 2 hours. Mommy's milk is coming in so he will be getting that "Liquid Gold" soon. Jacob is in love with him and mommy is learning to divide her time. I only slept 3 hours last night due to his circumcision burning from all the peepee. But the doctor said after 48 hours the pain should subside. I hope tonight goes better for us. Enjoy all the pictures!
Jaron is here!
Jaron was born June 29, 2005 8 lbs. 19 inches @ 3:14pm
He was born with a bilateral cleft lip and palate. Mommy has learned to feed him with the haberman feeder. He is doing great! Enjoy the pictures!
He was born with a bilateral cleft lip and palate. Mommy has learned to feed him with the haberman feeder. He is doing great! Enjoy the pictures!
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